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July 23, 2018

How Can a Community Garden Project Help People Who Are HIV Positive?

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Updates on ACOS News and Events

Only FDA-Approved Treatment for Relief of Noninfectious Diarrhea in HIV+ Patients Now Available
October 13, 2016

Napo Pharmaceuticals Launches Mytesi (crofelemer) as the Only FDA-Approved Treatment for Relief of Noninfectious Diarrhea in HIV+ Patients 

Launch Includes Copay Savings and Patient Assistance Programs to Ensure Affordable Access to Mytesi™, Formerly Marketed as Fulyzaq® 

October 13th 2016, today, NAPO Pharmceuticals announced the launch and general availability of the only antidiarrheal studied in and FDA-approved for the relief of diarrhea in HIV+ patients. Alongside this announcement NAPO also released news of their Mytesi Copay Savings Program and NapoCares™ Patient Assistance Program to provide people living with HIV/AIDS with affordable access to the drug.

Lisa Conte, CEO and founder of Napo, stated, "Chronic, symptomatic diarrhea remains a significant, underreported consequence of HIV, whether due to the side effects of antiretroviral therapy (ART) or the direct effect of HIV on the gastrointestinal (GI) tract. This problem is only going to increase as the HIV+ population gets older; more than 40 percent of people currently living with HIV/AIDS in the United States are over the age of 50."

The Mytesi Copay Savings Program provides copay assistance to eligible patients who have private health insurance, with the intent to have patients pay no more than $25 for a Mytesi prescription. The NapoCares Patient Assistance Program provides Mytesi free of charge to eligible patients who are not insured and may not be able to afford medication.

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Tagged With: DIARRHEA, HIV, MEDICATIONS, NAPO

AIDS care Ocean State help people deal with the physical and emotional issues around HIV, issues that are frequently magnified by poverty. While everyone can agree that medicine can help keep HIV in check, it might be surprising to know that hopelessness, uncertainty and feelings of isolation can be a barrier to living a healthy life for an HIV Positive person.

That’s why Livia Harkow started the Women’s Community Garden Project at our Tanner Street location in 2018. In fact, during a therapy group, a client asked if we could start a garden. Livia, a graduate of URI’s Master Gardener program, knew it was a good idea to engage clients. There is a lot of evidence to suggest that horticulture therapy can really improve the spirits of HIV positive, low income people.

How? It’s an excellent way to talk about nutrition and self-care, and creates a feeling of community and purpose; all of which generates positive emotions, self-esteem and a meaningful appreciation of life. It nurtures the idea that a woman’s body is her own, a feeling that may be new to our clients. In practical terms, it leads to people more actively interested in taking their medicine and going to group therapy. Plus, they are eating healthier, learning life skills, and being a part of something larger.

Thanks to the partnership of some generous donors, including the South Side Community Land Trust and Earth Appliance, our clients have planted a garden of to be proud of. These dedicated women in our group therapy take pride in the beautiful and blooming organic garden they created, where herbs, tomatoes, lettuce and squash thrive in the sunlight.

Inclusion is a big part of the program. Garden beds were created to be compliant with the Americans with Disabilities Act, so that people with physical limitations could also participate. An ACOS youth group has been invited to participate and Livia would like to expand the program to other ACOS Housing, such as New Transitions, Sunrise House and Austin Place.

Now, the program practically takes care of itself. The Community Gardening Project for Women continues to meet twice weekly using horticultural therapy principles. This wonderful program helps our clients combat isolation and give a sense of community to all who participate.

Would you like to help our clients live, happier, healthier lives by supporting programs like this one? Click here to donate to AIDS CareOcean State!